 | A diagnosis of metastatic breast cancer |  |  |  |
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| Web Links |
 | | Patient-Centred Guides: The Shock of Recurrence | | 09/05/07 |
| | Chapter Four of Advanced Breast Cancer: A Guide to Living with Metastatic Disease, 2nd Ed by Musa Mayer, copyright 1998, O'Reilly & Associates. |
| | I Still Buy Green Bananas | | 26/05/07 |
| | (publ by Y-ME National Breast Cancer Organization, 2006) Comprehensive booklet based on advice from people who are living with advanced breast cancer — how they face each day, make medical decisions, give and get support from their families and friends, and how the experience of living with cancer has changed their lives. |
| | The Patient Active Guide to Living with Advanced Breast Cancer | | 26/05/07 |
| | This booklet will help provide you with the support, education and hope you need. It contains information on how to improve your quality of life by actively participating in the choices you and your healthcare team make about treatment. Learn about the latest treatments, side effects and side effect management, as well as how to cope with the social and emotional challenges of your diagnosis. This booklet was developed by The Wellness Community and LBBC. |
| | Beast Cancer Action Nova Scotia (Canada) - A Guide for People with Advanced Breast Cancer | | 28/05/07 |
| | Navigating Your Path - A Guide for People with Advanced Breast Cancer. This booklet was developed by a national group of persons with breast cancer experience, cancer navigators, provincial networks and the Canadian Breast Cancer Network. |
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| Web Links |
| | Recurrence and metastatic disease discussion forum | | 03/05/07 |
| | Visit www.breastcancer.org for other useful and supportive information |
| | Recurrence Meeting Place | | 03/05/07 |
| | bcsupport.org |
| | Aussie Breast Cancer Forum | | 03/05/07 |
| | For those affected by breast cancer and for their family, friends, carers and loved ones. |
| | Advanced Breast Cancer Group Forum | | 03/05/07 |
| | Advanced Breast Cancer Group for women currently in the group, their partners and families, and others who have registered. |
| | BCMets | | 03/05/07 |
| | Metastatic Breast Cancer Information and Support - forums and information. |
| | Living Beyond Breast Cancer | | 03/05/07 |
| | Message board for women with advanced breast cancer. |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Metastatic breast cancer online support group. |
| | M-Mail (BreastNet - Breast Cancer Institute Australia) | | 25/05/07 |
| | M-Mail is an emailing list for patients with metastatic breast cancer, their family, friends and carers. Discussion-Support-Information |
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| Web Links |
| | Advanced BC | | 03/05/07 |
| | Musa Mayer has been a patient advocate since her own diagnosis with Stage II breast cancer in 1989. Her special focus is on helping those who are living with advanced breast cancer to make good treatment decisions based on the latest clinical research. She works with the FDA, the National Breast Cancer Coalition, the Institute of Medicine, and many other organisations in the US. |
| | Queensland Advanced Breast Cancer Group | | 03/05/07 |
| | A group for women with advanced breast cancer in Queensland. |
| | Metastatic Breast Cancer Network | | 03/05/07 |
| | Fighting for treatments to extend life as the search for a cure continues. |
| | BrainMetsBC.org | | 17/12/07 |
| | This website offers women with metastatic breast cancer and their families a place to learn about brain metastases and other central nervous system metastases from the patient perspective. Source of latest clinical and personal information. |
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| Web Links |
| | Hopkins Breast Center Ask An Expert | | 29/04/07 |
| | Johns Hopkins Breast Center's "Ask An Expert" section on metastatic breast cancer. (This section is not intended for providing primary medical advice concerning specific medical care or treatment.) |
| | CancerSymptoms.org (Oncology Nursing Society) | | 06/05/07 |
| | Submit a question to an oncology nursing expert about any of the treatment-related symptom that patients undergoing treatment for a cancer diagnoses commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction. |
| | OncoLink "Ask the Experts" | | 23/07/07 |
| | Send a question to one of OncoLink's "Ask the Experts" panel of medical experts. If your question is chosen, your answer will be posted on OncoLink in the hope that it will be useful to others as well. |
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| Web Links |
| | Association of Cancer Online Resources | | 09/05/07 |
| | A male breast cancer discussion list. |
| Breast cancer websites with ABC chapters | | | |
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| Web Links |
| | Breastcancer.org - Recurrent and Metastatic Breast Cancer | | 25/05/07 |
| | Useful, easily digestible chapters on metastatic breast cancer |
| | Breast Cancer Network Australia | | 03/05/07 |
| | This chapter discusses secondary breast cancer and has an excellent resources section. |
| | National Breast Cancer Centre (Australia) | | 25/05/07 |
| | Information about metastatic breast cancer. Includes \'Guide to Living With Metastatic Cancer\' that you can download. |
| | Living Beyond Breast Cancer | | 25/05/07 |
| | Section for women living with advanced breast cancer. Access latest breast cancer news, updates on clinical trials, as well as medical and quality-of-life topics. |
| | Cancerbackup (UK) | | 25/05/07 |
| | Up-to-date information, practical advice and support. |
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| Web Links |
| | Australian Clinical Trials Registry | | 24/04/07 |
| | National, online register of clinical trials being undertaken in Australia. |
| | National Cancer Institute Clinical Trials (US) | | 24/04/07 |
| | Online register of clinical trials being undertaken in America |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about complementary & alternative medicine clinical trials. |
| | Cancer Research UK | | 17/12/07 |
| | Triple negative breast cancer Q&A plus link to the Triple Negative Trial (TNT) for women with advanced breast cancer. |
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| Web Links |
| | MSKCC Herbs, Botanicals & Other | | 11/04/07 |
| | The Memorial Sloan-Kettering Cancer Center provides evidence-based information about herbs, botanicals, supplements, and more. |
| | Susan G. Komen for the Cure | | 10/08/07 |
| | Overview of the complementary and alternative medical (CAM) field as well as detailed information on some popular CAM therapies. |
| | National Centre for Complementary and Alternative Medicine (US) | | 25/04/07 |
| | This site is under the banner of the National Institutes of Health. |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about integrating complementary & alternative cancer care with traditional approaches.
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| Dealing with advanced cancer | | | |
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| Web Links |
| | Advanced Breast Cancer: Living Each Day | | 29/04/07 |
| | Provides advice on how to deal with the physical and emotional burdens of metastatic breast cancer. Can also be downloaded as a booklet. The National Cancer Institute (US) |
| | When a Parent Has Cancer - How to Talk to Your Kids | | 28/04/07 |
| | Has a section on talking to children when cancer has advanced. The Cancer Council NSW |
| | Secondary Breast Cancer booklet (UK) | | 28/04/07 |
| | Breast Cancer Care's guide to Secondary Breast Cancer (UK). Booklet can be downloaded. |
| | The Wellness Community | | 08/05/07 |
| | Patient Active Guide to Living With Advanced Breast Cancer with a link to join the online support group for people with metastatic cancer (you must register for this).
The Wellness Community is an international non-profit organization dedicated to providing free support, education and hope to people with cancer and their loved ones. |
| | MedicineNet.com: Advanced Breast Cancer: Living to the End | | 25/05/07 |
| | Living with metastatic disease does not have to be a contradiction of terms. What steps can you take that will enhance the quality of life you live, regardless of the quantity? This interview discusses choosing how you wish to face each day, taking care of yourself, and dealing with friends and family with Musa Mayer, author of Advanced Breast Cancer: A Guide to Living with Metastatic Disease. Recorded in late 2002, this article is still very relevant today.
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| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing support list for parents with cancer and the issues of raising children. |
| | American Cancer Society | | 26/05/07 |
| | Helping Children When A Family Member Has Cancer: Dealing With A Parent's Terminal Illness |
| | Handbook for Mortals: Guidance For People Facing Serious Illness | | 26/05/07 |
| | Handbook for Mortals: Guidance For People Facing Serious Illness By Joanne Lynn, M.D. and Joan Harrold, M.D., 1999
A comprehensive and authoritative guide to end of life care, written for a general audience by a team of specialists that includes some of the world's leading authorities in the field. Highly readable and sensible book with an overall tone that is encouraging without denying the difficult realities of living with serious illness. |
| | Willow: Breast Cancer Support Canada - Living with Metastatic Disease | | 28/05/07 |
| | Living with Metastatic Disease: An Information Brochure for Women with Breast Cancer |
| | Hope & Hurdles Pack | | 10/08/07 |
| | BCNA's Hope & Hurdles Pack for women with secondary breast cancer includes a range of information contained in a convenient satchel. To order, click on this link or call 1300 887 340 (freecall).
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| Web Links |
| | MoodGYM (Australia) | | 08/05/07 |
| | MoodGYM is an internet-based therapy program designed to prevent depression in young people. Although it is intended for young people, people who are older may find it helpful. MoodGYM training program delivers cognitive behavioural therapy for preventing depression (Australian National University). [Research shows this on-line tool to be effective. Kathleen M. Griffiths, Helen Christensen (2007)
Internet-based mental health programs: A powerful tool in the rural medical kit
Australian Journal of Rural Health 15 (2), 81–87.] doi:10.1111/j.1440-1584.2007.00859.)
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| | BeyondBlue (Australia) | | 08/05/07 |
| | beyondblue provides information on depression and anxiety and effective treatment options. (Australian governments initiative) |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about cancer depression. |
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| Web Links |
| | Association of Cancer Online Resources | | 25/05/07 |
| | Emailing list about finance issues related to cancer.
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| Web Links |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Facing-Ahead: Helping to face the death of a loved one. |
| | People Living With Cancer | | 26/05/07 |
| | Grieving the loss of a child or adult child, including gender differences in grieving. This article also discusses helping a sibling who is grieving and the importance of allowing yourself time to grieve. Links to other useful sites. |
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| Web Links |
| | Adults Need Smiles Too! (Australia) | | 27/05/07 |
| | Adults Need Smiles Too! mails out a small but constant stream of inspirational cards, cartoons, sayings, bookmarks, and other small items by snail-mail to adults in Australia who have a severe, chronic or terminal illness to put a smile on their faces when the mail comes, and to remind them that somebody is thinking of them. Members may be nominated to join Adults Need Smiles Too! by themselves or another person. |
| | Cancer Made Me a Shallower Person: A Memoir in Comics | | 27/05/07 |
| | by Miriam Engelberg. This book has been described on Amazon as "wonderful", "incredibly funny" and "excellent, hilarious, irreverent, punch-packing, truthful, gripping...". And as a reviewer who is a doctor says "Laughing at something gives you a sense of power, and power over cancer is a rare commodity for most cancer patients and their loved ones." (Ed. I have just ordered it for myself. A good laugh never goes amiss. I will post a review when I have read it.) |
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| Web Links |
| | Fairygodmother Foundation (US) | | 26/05/07 |
| | Fairygodmother Foundation grants wishes to adults in the US facing terminal illness. |
| | Dream Foundation (US) | | 26/05/07 |
| | The Dream Foundation grants dreams to terminally ill adults in the US. |
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| Web Links |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about hospice issues related to cancer patients. |
| | Association of Cancer Online Resources | | 09/05/07 |
| | A palliative care discussion group. |
| | Living Caring Working | | 25/05/07 |
| | Link to all Australian State Palliative Care Australia organisations |
| | Palliative Care Australia | | 25/05/07 |
| | National Hospice and palliative care information and support. |
| | Living Caring Working | | 25/05/07 |
| | Improving quality of life for people with a life threatening illness, their families, carers and communities. |
| | Amitayus Hospice Service | | 25/05/07 |
| | Amitayus Hospice Service is a not for profit NGO based in and serving the Byron Shire in NSW, Australia. It provides a range of support services to people with a diagnosed life threatening illness, their family and primary carers, free of cost. |
| | Hospice (US) | | 26/05/07 |
| | For patients and families facing life-threatening illness. |
| | Growth House (US) | | 26/05/07 |
| | Growth House provides an award-winning international portal to a wide range of excellent resources for life-threatening illness and end of life care. |
| | American College of Physicians - "Home Care Guide for Advanced Cancer" | | 26/05/07 |
| | For family, friends, and hospice workers caring for those with advanced cancer at home, when quality of life is the primary goal. |
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| Web Links |
| | Lotsa Helping Hands | | 26/05/07 |
| | Lotsa Helping Hands is a simple, immediate way for friends, family, colleagues, and neighbors to assist loved ones in need. It's an easy-to-use, private group calendar, specifically designed for organising helpers, where everyone can pitch in with meals delivery, rides, and other tasks necessary for life to run smoothly during a crisis. |
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| Web Links |
| | Association of Cancer Online Resources | | 25/05/07 |
| | The caregivers online support group. |
| | A Journey Lived | | 25/05/07 |
| | A collection of personal stories from carers (Palliative Care Australia). |
| | Hospice (US) | | 26/05/07 |
| | What you can do to be a supportive caregiver |
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| Web Links |
| | My Parent's Cancer | | 28/04/07 |
| | If your mum or someone you love has been diagnosed with breast cancer, this website is for you. |
| | Kids Konnected (US) | | 08/05/07 |
| | For children who have a parent with cancer, or have lost a parent to cancer. |
| Resources for husbands/partners | | | |
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| Web Links |
| | Men Against Breast Cancer's Breast Cancer Action Plan and Caregiver's Guide For Men | | 04/11/07 |
| | Men Against Breast Cancer has produced a book called, FOR THE WOMEN WE LOVE, A Breast Cancer Action Plan and Caregiver's Guide For Men. This is a no-nonsense navigation and survival guide for men who are committed to being there for the women they love. This book is a highly structured road map that will give you a better understanding of what the patient and caregiver are up against. This book will give men the right tools to make a real difference in the quality of survivorship of the patient and family. It s available to buy in hard copy or to download for free. |
| | Breast Cancer Husband | | 04/11/07 |
| | Breast Cancer Husband: How to Help Your Wife (and Yourself) Through Diagnosis Treatment, and Beyond, by Marc Silver. |
| | Boys do Cry | | 26/05/07 |
| | This site outlines the issues, problems and effects of breast cancer from a man’s perspective and provides tools to deal with them. |
| | Men Against Breast Cancer | | 26/05/07 |
| | Provides support to men to be effective caregivers and encourages men to be active participants in the fight against breast cancer. |
| | Association of Cancer Online Resources | | 26/05/07 |
| | Emailing support list for partners of breast cancer patients. |
| | Mates-Mail (BreastNet - Breast Cancer Institute Australia) | | 26/05/07 |
| | Mates-Mail is an emailing list for men whose partners have breast cancer. |
| | LBBC - "Partners in Survival, for Men Only" | | 04/11/07 |
| | Transcript of a talk given by Matthew J. Loscalzo in February 25, 2007 at a LBBC conference to help men support women with breast cancer using problem solving. |
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| Web Links |
| | Mothers supporting daughters with breast cancer (MSDBC) | | 03/05/07 |
| | Support includes the distribution of a mother's handbook and daughter's companion brochure that provides guidance as to how a mother can be constructively helpful to her daughter during her breast cancer treatment. |
| Retreats & Courses - Australia | | | |
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| Web Links |
| | Quest for Life | | 11/04/07 |
| | Petrea King's Quest for Life foundation provides services for people living with the challenges of serious, chronic and life-threatening illness, grief, loss and trauma. It is located in Bundanoon in the Southern Highlands of NSW, Australia. |
| | The Bright Side of Life | | 11/04/07 |
| | The Bright Side of Life is a quality of life retreat staffed by registered nurses for adults undergoing the physical and emotional challenges associated with the diagnosis and treatment of cancer. It is located in the Tweed Valley, Northern NSW. |
| | The Otis Foundation | | 11/04/07 |
| | The Otis Foundation provides sanctuaries, free of charge, to nurture those facing the challenges of living with breast cancer and reduce the psychological impact on their lives. It is located in Mandurang, near Bendigo in Victoria. |
| | Life Force Cancer Foundation | | 06/05/07 |
| | Life Force is a non-profit, public benevolent institution delivering psycho-social care to people affected by cancer. The Life Force program currently encompasses support services to assist cancer patients, their families and carers to reduce and manage anxiety and distress; country retreats, telephone and individual counselling by qualified professionals; home and hospital visits and weekly support groups in the Sydney metropolitan area; workshops for people affected by cancer and training programs for health care professionals; information and education; groupwork and meditation. |
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| Web Links |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about sexuality after a cancer diagnosis |
| Treating side effects & symptoms | | | |
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| Web Links |
| | National Breast Cancer Centre (Australia) | | 06/05/07 |
| | Controlling side effects of treatment or the disease |
| | Cancer Research UK | | 06/05/07 |
| | Controlling the symptoms of secondary breast cancer.
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| | CancerSymptoms.org (Oncology Nursing Society) | | 06/05/07 |
| | Designed for patients and caregivers to provide information on learning about and managing each of ten cancer treatment-related symptom that patients undergoing treatment for a cancer diagnoses commonly experience: anorexia, cognitive dysfunction, depression, dyspnea, fatigue, hormonal disturbances, neutropenia, pain, peripheral neuropathy, and sexual dysfunction. |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about fatigue associated with cancer and cancer treatments. |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about pain associated with cancer and cancer treatments. |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about neuropathy induced by cancer & treatments. |
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| Web Links |
| | Susan G. Koman for the Cure | | 24/04/07 |
| | Treatment of Metastatic Breast Cancer |
| | Y-Me National Breast Cancer Organization | | 27/05/07 |
| | Dealing with a metastasis can often present situations in which decision making is complicated, including many more treatment options and possibilities than before. The topics below are intended to help you understand the details of metastases and treatment and care options that are available. |
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| Web Links |
| | AdvancedBC.org | | 09/05/07 |
| | Links to reports and articles about latest advanced breast cancer treatments |
| | Association of Cancer Online Resources | | 09/05/07 |
| | Emailing list about current advances in breast cancer treatments. |
| | CancerConsultants | | 26/05/07 |
| | Latest Breast Cancer News provides summaries of new treatment strategies as they are discovered and reported by cancer physicians around the world. Scroll down for latest metastatic breast cancer news section.
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| | Triple Negative BC Foundation | | 17/12/07 |
| | The TNBC Foundation website aims to raise awareness of triple negative breast cancer and to support scientists and researchers in their effort to determine the definitive causes of triple negative breast cancer so that effective detection, diagnosis, prevention and treatment can be pursued and achieved. |
